November 2021

Dying Well

A spotlight on wellbeing when living with a terminal illness

Dying well
In partnership with

What matters to people with terminal illness and how can society support their wellbeing as long as possible? The evidence about what matters spreads across academia, policy and practice.

Through the Dying Well project, we bring people from across these fields together to share their learnings, and identify where the evidence gaps are when it comes to living with a terminal illness and wellbeing.

Why is this important?

With a wellbeing lens on policy, some things would be different. As with mental health, end of life care and how the experience of pain is approached are not adequately addressed by current metrics and approaches. This project aims to identify where research and practice need to go next.

About the Dying Well project

This initial work on Dying Well was a collaborative programme conducted in partnership with Clair Fisher, a long-time collaborator of the Centre. Clair sadly passed away in January 2022 having lived with a terminal illness since 2018, during which time she was a passionate and influential advocate for improving wellbeing in palliative care. Clair was also behind the dyingwell.uk, a website where she shared her story. The blogs from there are now hosted on our website and can be found in the tiles at the bottom of this page.

The project explores:

  • Making the case for putting wellbeing at the heart of palliative and end of life care and services, especially in Advance Care Planning conversations.
  • Providing a space for practitioners to share their experience and insights of putting wellbeing the heart of hospice and palliative care.
  • Showcasing research that can help policy makers and practitioners design better, wellbeing-focused services.
  • Bringing together a collaborative network of interested practitioners, policy-makers and researchers to share learning and ideas.

Explore the materials from the Dying Well work below

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In this project

Blog by Clair Fisher - January 2022
Dying well - a legacy to build on
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Blog by Clair Fisher - February 2021
How can wellbeing evidence improve the lives of people living with terminal illness?
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A summary of practitioner conversations
Dying Well: Wellbeing at the end of life
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Podcast episodes with Clair
Dying Well: podcast mini series
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Conversations: illustrations and presentations
Dying Well: a good place to die
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Conversations: illustrations and presentations
Dying Well: conversations at the end of life
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Conversations: illustrations and presentations
Dying Well: understanding and measuring wellbeing
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Project
Dying Well - Work and employment
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Blog by Clair Fisher - January 2022
A perfect welcome
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Blog by Clair Fisher - November 2021
Palliative care
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Blog by Clair Fisher - July 2021
Dying well: what's next?
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Blog by Clair Fisher - June 2021
Dying well: what works
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Blog by Clair Fisher - May 2021
Dying matters
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Blog by Clair Fisher - April 2021
Numbers
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Blog by Clair Fisher - April 2021
In between
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Blog by Clair Fisher - April 2021
10 interesting things
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Blog by Clair Fisher - March 2021
Dahlias
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Blog by Clair Fisher - March 2021
Kintsugi
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Blog by Clair Fisher - February 2021
Retirement
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Blog by Clair Fisher - January 2021
Mini missions
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Blog by Clair Fisher - December 2020
Another New Year
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Blog by Clair Fisher - December 2020
Hello hospice
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Blog by Clair Fisher - November 2020
Wellbeing?
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Blog by Clair Fisher - November 2020
Happy things
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